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Federal government websites often end in. Before sharing sensitive information, make sure you're on a federal government site. The site is secure. NCBI Bookshelf. Despite a growing but still limited body of knowledge about the prevalence, diagnosis, etiology, prevention, and treatment of health 1 problems among women in general, the health problems of some subgroups of women have continued to receive relatively little attention.
Although research on lesbians has increased over the past two decades, there is still relatively little research on their health. The Institute of Medicine IOM Committee on Lesbian Health Research Priorities was established in to assess the strength of the science base regarding the health problems of lesbians i.
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Individuals appointed to the committee brought a wide range of perspectives and professional backgrounds to the workshop study, including expertise in lesbian health issues, mental and addictive disorders, breast cancer, gynecology, epidemiology, adolescence, violence against women, neuroscience, minority health, biostatistics, and sample survey methodology. Names of potential committee members were solicited from a variety of sources, including lesbian health organizations and groups with an interest in lesbian health.
The committee met three times—in July, October, and November of As part of the workshop study the committee conducted an invitational workshop on the physical and mental health concerns of lesbians and the methodological issues involved in conducting research in these areas. At the workshop, information was presented to the committee on the strength of the science base, methodological challenges in conducting research on lesbian health, and gaps in what is known about specific health problems for which lesbians may be at risk.
Experts in the biomedical, behavioral, and social sciences; ethics; lesbian health; economics; and research methodology discussed the state of the field and areas in which clarification of the issues is most needed. The two-day workshop featured 21 invited speakers and included public testimony from 14 presenters see Appendix B. Approximately 50 interested members of the public also attended the workshop and added to the discussion of the issues see Appendix C.
To involve a wider range of people with expertise in lesbian health issues, the committee established an ad hoc public liaison group. The public liaison group included researchers, representatives of government and of community and national organizations, and other individuals interested in the issues. Establishment of the public liaison group reflected the committee's recognition of both the important expertise and knowledge of the issues that rests in the lesbian health community and the diversity therein.
Members of the public liaison group were kept informed of the progress of the study and were invited to the public workshop and to submit testimony to the committee. In addition to the information received through workshop presentations and public testimony, the committee identified and reviewed numerous pieces of published and unpublished literature related to lesbian health. The review included articles in the scientific literature, books, unpublished conference and meeting presentations, reports, and monographs.
A listing of selected references is presented in Appendix A. The committee also received written testimony from a number of individuals and organizations unable to attend the workshop see Appendix D. The report reflects the committee's review and evaluation of the scientific literature on lesbian health and of the testimony presented at the workshop.
Selected quotes from workshop speakers are included to more vividly illustrate for the reader some of the issues that emerged during the workshop testimonies as well as the committee's evaluation of the literature. Wherever possible reference to the published literature, surveys, workshop testimony, or other sources of information available to the committee is indicated.
Statements not so referenced are those of the committee or from discussions during the workshop. It is very important to note the limitations of this study and report. Because the study was developed and funded as a workshop study, the committee did not have the resources to undertake the in-depth level of review and analysis that is usual in a full-scale IOM study. In particular, the committee was generally unable to consider issues beyond those that were discussed at the two-day workshop, to conduct in-depth reviews of related areas e.
Nonetheless, the committee was able to conduct a broad workshop and literature review of the field and to assess the general state of knowledge across a wide range of issues for lesbian health. The review and assessment form the substance for this report.